Toward assessing family outcomes of service delivery: Validation of a family quality of life survey

Jiyeon Park, L. Hoffman, J. Marquis, A. P. Turnbull, D. Poston, H. Mannan, M. Wang, L. L. Nelson

Research output: Contribution to journalArticle

139 Scopus citations

Abstract

Background. The concept of family quality of life (QoL) has emerged as an important outcome of service delivery for individuals with disabilities and their families. The present study describes the process of developing a tool to measure family QoL. Methods and results. A total of 1197 respondents participated in a national field test. Through factor analysis, the survey was refined in several ways: (1) the preliminary 10-domain structure was reduced to a five-domain structure; (2) a total of 41 items were selected for the revised survey; and (3) wordings were clarified. Conclusions. The implications for future research and practice are discussed.

Original languageEnglish (US)
Pages (from-to)367-384
Number of pages18
JournalJournal of Intellectual Disability Research
Volume47
Issue number4-5
DOIs
StatePublished - May 1 2003

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Keywords

  • Assessment
  • Family outcomes
  • Family quality of life survey
  • Service delivery
  • Validation

ASJC Scopus subject areas

  • Rehabilitation
  • Arts and Humanities (miscellaneous)
  • Neurology
  • Clinical Neurology
  • Psychiatry and Mental health

Cite this

Park, J., Hoffman, L., Marquis, J., Turnbull, A. P., Poston, D., Mannan, H., Wang, M., & Nelson, L. L. (2003). Toward assessing family outcomes of service delivery: Validation of a family quality of life survey. Journal of Intellectual Disability Research, 47(4-5), 367-384. https://doi.org/10.1046/j.1365-2788.2003.00497.x