The grief of mothers after the sudden unexpected death of their infants

Richard D. Goldstein, Ruth I. Lederman, Wendy G. Lichtentha, Sue E. Morris, Melanie Human, Amy J. Elliott, Deb Tobacco, Jyoti Angal, Hein Odendaal, Hannah C. Kinney, Holly G. Prigerson

Research output: Contribution to journalArticle

3 Citations (Scopus)

Abstract

BACKGROUND: The loss of a child is associated with elevated grief severity, and sudden infant death syndrome (SIDS) is the leading cause of postneonatal mortality in the United States. The diagnosis of prolonged grief disorder (PGD) has gained broader acceptance and use. Little is known about PGD in mothers after SIDS. METHODS: Between May 2013 and July 2016, we assessed 49 SIDS-bereaved mothers living in informal settlements near Cape Town, South Africa, and on the Pine Ridge Indian Reservation and 359 SIDS-bereaved mothers affiliated with SIDS parent-support organizations in the United States, United Kingdom, Australia, New Zealand, and the Netherlands. We examined PGD symptom severity and diagnostic prevalence rates between the samples and other significant grief indicators during the period 2 to 48 months after the deaths of their infants. RESULTS: Extremely high, persistent, and similar rates of PGD were found in both samples at every time interval. The prevalence of PGD was 50.0% in either sample (mean months from loss: 20.5 vs 24.9). Daily, intrusive emotional pain or yearning was found in 68.1% of subjects; yearning was significantly associated with emotional pain (P < .0001). Role confusion and anger were the most prevalent symptoms, reported by the majority at every time interval. Rates of role confusion, anger, and diminished trust in others remained constant. Acceptance was less prevalent than other grief indicators at every interval. CONCLUSIONS: Severe symptoms and heightened risk for PGD was seen in mothers after their infants died of SIDS, with discernible symptom profiles. Given their involvement with families after SIDS, pediatricians may have a unique role in identifying this problem and helping address its consequences.

Original languageEnglish (US)
Article numbere20173651
JournalPediatrics
Volume141
Issue number5
DOIs
StatePublished - May 1 2018
Externally publishedYes

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Grief
Sudden Death
Sudden Infant Death
Mothers
Confusion
Anger
Pain
Infant Mortality
South Africa
New Zealand
Netherlands
Organizations

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

Cite this

Goldstein, R. D., Lederman, R. I., Lichtentha, W. G., Morris, S. E., Human, M., Elliott, A. J., ... Prigerson, H. G. (2018). The grief of mothers after the sudden unexpected death of their infants. Pediatrics, 141(5), [e20173651]. https://doi.org/10.1542/peds.2017-3651

The grief of mothers after the sudden unexpected death of their infants. / Goldstein, Richard D.; Lederman, Ruth I.; Lichtentha, Wendy G.; Morris, Sue E.; Human, Melanie; Elliott, Amy J.; Tobacco, Deb; Angal, Jyoti; Odendaal, Hein; Kinney, Hannah C.; Prigerson, Holly G.

In: Pediatrics, Vol. 141, No. 5, e20173651, 01.05.2018.

Research output: Contribution to journalArticle

Goldstein, RD, Lederman, RI, Lichtentha, WG, Morris, SE, Human, M, Elliott, AJ, Tobacco, D, Angal, J, Odendaal, H, Kinney, HC & Prigerson, HG 2018, 'The grief of mothers after the sudden unexpected death of their infants', Pediatrics, vol. 141, no. 5, e20173651. https://doi.org/10.1542/peds.2017-3651
Goldstein RD, Lederman RI, Lichtentha WG, Morris SE, Human M, Elliott AJ et al. The grief of mothers after the sudden unexpected death of their infants. Pediatrics. 2018 May 1;141(5). e20173651. https://doi.org/10.1542/peds.2017-3651
Goldstein, Richard D. ; Lederman, Ruth I. ; Lichtentha, Wendy G. ; Morris, Sue E. ; Human, Melanie ; Elliott, Amy J. ; Tobacco, Deb ; Angal, Jyoti ; Odendaal, Hein ; Kinney, Hannah C. ; Prigerson, Holly G. / The grief of mothers after the sudden unexpected death of their infants. In: Pediatrics. 2018 ; Vol. 141, No. 5.
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