Patient Perceptions of Illness Identity in Cancer Clinical Trial Decision-Making

Angela Palmer-Wackerly, Phokeng M. Dailey, Jessica L. Krok-Schoen, Nancy D. Rhodes, Janice L. Krieger

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

When patients are diagnosed with cancer, they begin to negotiate their illness identity in relation to their past and future selves, their relationships, and their group memberships. Thus, how patients view their cancer in relation to their other identities may affect how and why they make particular decisions about treatment options. Using the Communication Theory of Identity (CTI), the current study explores: (1) how and why illness identity is framed across identity layers in relation to one particular cancer treatment: participation in a cancer clinical trial (CT); and (2) how and why patients experience identity conflicts while making their treatment decisions. Semi-structured, in-depth interviews were analyzed for 46 cancer patients who were offered a CT. Results of a grounded theory analysis indicated that patients expressed separate identity frames (e.g., personal, relational, and communal), aligned identity frames (e.g., personal and communal), and identity conflicts (e.g., personal-personal). This study theoretically shows how and why patient illness identity relates to cancer treatment decision-making as well as how and why patients relate (and conflict) with the cancer communal identity frame. Practical implications include how healthcare providers and family members can support patient decision-making through awareness of and accommodating to identity shifts.

Original languageEnglish (US)
Pages (from-to)1045-1054
Number of pages10
JournalHealth Communication
Volume33
Issue number8
DOIs
StatePublished - Aug 3 2018

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Oncology
cancer
illness
Decision making
Clinical Trials
decision making
Information theory
Neoplasms
identity conflict
Decision Making
Clinical Decision-Making
Therapeutics
communication theory
Health Personnel
grounded theory
group membership
Communication
family member
Interviews

ASJC Scopus subject areas

  • Health(social science)
  • Communication

Cite this

Patient Perceptions of Illness Identity in Cancer Clinical Trial Decision-Making. / Palmer-Wackerly, Angela; Dailey, Phokeng M.; Krok-Schoen, Jessica L.; Rhodes, Nancy D.; Krieger, Janice L.

In: Health Communication, Vol. 33, No. 8, 03.08.2018, p. 1045-1054.

Research output: Contribution to journalArticle

Palmer-Wackerly, Angela ; Dailey, Phokeng M. ; Krok-Schoen, Jessica L. ; Rhodes, Nancy D. ; Krieger, Janice L. / Patient Perceptions of Illness Identity in Cancer Clinical Trial Decision-Making. In: Health Communication. 2018 ; Vol. 33, No. 8. pp. 1045-1054.
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