Patient information sources when facing repair of abdominal aortic aneurysm

PROVE-AAA Study Team

Research output: Contribution to journalArticle

Abstract

Objective: Shared medical decision making is most important when there are competing options for repair such as in treatment of abdominal aortic aneurysm (AAA). We sought to understand the sources of patients' pre-existing knowledge about AAA to better inform treating physicians about patients' needs for preoperative counseling. Methods: We performed a multicenter survey of patients facing AAA repair at 20 Veterans Affairs hospitals across the United States as part of the Preferences for Open Versus Endovascular Repair of AAA study. A validated survey instrument was administered to examine the sources of information available and commonly used by patients to learn about their repair options. The survey was administered by study personnel before the patient had any interaction with the vascular surgeon because survey data were collected before the vascular clinic visit. Results: Preliminary analysis of data from 99 patients showed that our cohort was primarily male (99%) and elderly (mean age 73 years). Patients commonly had a history of hypertension (86%), prior myocardial infarction (32%), diabetes (32%), and were overweight (58%). Patients arrived at their surgeon's office appointment with limited information. A majority of patients (52%) reported that they had not talked to their primary care physician at all about their options for AAA repair, and one-half (50%) reported that their view of the different surgical options had not been influenced by anyone. Slightly less than one-half of patients reported that they did not receive any information about open surgical aneurysm repair and endovascular aortic aneurysm repair (41% and 37%, respectively). Few patients indicated using the internet as their main source of information about open surgical aneurysm repair and endovascular aortic aneurysm repair (10% and 11%, respectively). Conclusions: Patients are commonly referred for AAA repair having little to no information regarding AAA pathology or repair options. Fewer than one in five patients searched the internet or had accessed other sources of information on their own. Most vascular surgeons should assume that patients will present to their first vascular surgery appointment with minimal understanding of the treatment options available to them.

Original languageEnglish (US)
JournalJournal of vascular surgery
DOIs
StateAccepted/In press - Jan 1 2019

Fingerprint

Abdominal Aortic Aneurysm
Blood Vessels
Aortic Aneurysm
Internet
Aneurysm
Appointments and Schedules
Veterans Hospitals
Primary Care Physicians
Ambulatory Care
Counseling
Decision Making

Keywords

  • Abdominal aortic aneurysm
  • Decision ai Patient education
  • EVAR
  • Information
  • Shared decision making

ASJC Scopus subject areas

  • Surgery
  • Cardiology and Cardiovascular Medicine

Cite this

Patient information sources when facing repair of abdominal aortic aneurysm. / PROVE-AAA Study Team.

In: Journal of vascular surgery, 01.01.2019.

Research output: Contribution to journalArticle

@article{48e9de923d2b45ff996ff78f558f57e9,
title = "Patient information sources when facing repair of abdominal aortic aneurysm",
abstract = "Objective: Shared medical decision making is most important when there are competing options for repair such as in treatment of abdominal aortic aneurysm (AAA). We sought to understand the sources of patients' pre-existing knowledge about AAA to better inform treating physicians about patients' needs for preoperative counseling. Methods: We performed a multicenter survey of patients facing AAA repair at 20 Veterans Affairs hospitals across the United States as part of the Preferences for Open Versus Endovascular Repair of AAA study. A validated survey instrument was administered to examine the sources of information available and commonly used by patients to learn about their repair options. The survey was administered by study personnel before the patient had any interaction with the vascular surgeon because survey data were collected before the vascular clinic visit. Results: Preliminary analysis of data from 99 patients showed that our cohort was primarily male (99{\%}) and elderly (mean age 73 years). Patients commonly had a history of hypertension (86{\%}), prior myocardial infarction (32{\%}), diabetes (32{\%}), and were overweight (58{\%}). Patients arrived at their surgeon's office appointment with limited information. A majority of patients (52{\%}) reported that they had not talked to their primary care physician at all about their options for AAA repair, and one-half (50{\%}) reported that their view of the different surgical options had not been influenced by anyone. Slightly less than one-half of patients reported that they did not receive any information about open surgical aneurysm repair and endovascular aortic aneurysm repair (41{\%} and 37{\%}, respectively). Few patients indicated using the internet as their main source of information about open surgical aneurysm repair and endovascular aortic aneurysm repair (10{\%} and 11{\%}, respectively). Conclusions: Patients are commonly referred for AAA repair having little to no information regarding AAA pathology or repair options. Fewer than one in five patients searched the internet or had accessed other sources of information on their own. Most vascular surgeons should assume that patients will present to their first vascular surgery appointment with minimal understanding of the treatment options available to them.",
keywords = "Abdominal aortic aneurysm, Decision ai Patient education, EVAR, Information, Shared decision making",
author = "{PROVE-AAA Study Team} and Anderson, {Peter B.} and Wanken, {Zachary J.} and Perri, {Jennifer L.} and Columbo, {Jesse A.} and Ravinder Kang and Spangler, {Emily L.} and Karina Newhall and Brooke, {Benjamin S.} and Hasan Dosluoglu and Lee, {Eugene S.} and Raffetto, {Joseph D.} and Henke, {Peter K.} and Tang, {Gale L.} and Leila Mureebe and Panagiotis Kougias and Jason Johanning and Shipra Arya and Scali, {Salvatore T.} and Stone, {David H.} and Suckow, {Bjoern D.} and Kristine Orion and Vivienne Halpern and Jessica O'Connell and Daniel Inhat and Peter Nelson and Edith Tzeng and Wei Zhou and Michael Barry and Brenda Sirovich and Goodney, {Philip P.}",
year = "2019",
month = "1",
day = "1",
doi = "10.1016/j.jvs.2019.04.460",
language = "English (US)",
journal = "Journal of Vascular Surgery",
issn = "0741-5214",
publisher = "Mosby Inc.",

}

TY - JOUR

T1 - Patient information sources when facing repair of abdominal aortic aneurysm

AU - PROVE-AAA Study Team

AU - Anderson, Peter B.

AU - Wanken, Zachary J.

AU - Perri, Jennifer L.

AU - Columbo, Jesse A.

AU - Kang, Ravinder

AU - Spangler, Emily L.

AU - Newhall, Karina

AU - Brooke, Benjamin S.

AU - Dosluoglu, Hasan

AU - Lee, Eugene S.

AU - Raffetto, Joseph D.

AU - Henke, Peter K.

AU - Tang, Gale L.

AU - Mureebe, Leila

AU - Kougias, Panagiotis

AU - Johanning, Jason

AU - Arya, Shipra

AU - Scali, Salvatore T.

AU - Stone, David H.

AU - Suckow, Bjoern D.

AU - Orion, Kristine

AU - Halpern, Vivienne

AU - O'Connell, Jessica

AU - Inhat, Daniel

AU - Nelson, Peter

AU - Tzeng, Edith

AU - Zhou, Wei

AU - Barry, Michael

AU - Sirovich, Brenda

AU - Goodney, Philip P.

PY - 2019/1/1

Y1 - 2019/1/1

N2 - Objective: Shared medical decision making is most important when there are competing options for repair such as in treatment of abdominal aortic aneurysm (AAA). We sought to understand the sources of patients' pre-existing knowledge about AAA to better inform treating physicians about patients' needs for preoperative counseling. Methods: We performed a multicenter survey of patients facing AAA repair at 20 Veterans Affairs hospitals across the United States as part of the Preferences for Open Versus Endovascular Repair of AAA study. A validated survey instrument was administered to examine the sources of information available and commonly used by patients to learn about their repair options. The survey was administered by study personnel before the patient had any interaction with the vascular surgeon because survey data were collected before the vascular clinic visit. Results: Preliminary analysis of data from 99 patients showed that our cohort was primarily male (99%) and elderly (mean age 73 years). Patients commonly had a history of hypertension (86%), prior myocardial infarction (32%), diabetes (32%), and were overweight (58%). Patients arrived at their surgeon's office appointment with limited information. A majority of patients (52%) reported that they had not talked to their primary care physician at all about their options for AAA repair, and one-half (50%) reported that their view of the different surgical options had not been influenced by anyone. Slightly less than one-half of patients reported that they did not receive any information about open surgical aneurysm repair and endovascular aortic aneurysm repair (41% and 37%, respectively). Few patients indicated using the internet as their main source of information about open surgical aneurysm repair and endovascular aortic aneurysm repair (10% and 11%, respectively). Conclusions: Patients are commonly referred for AAA repair having little to no information regarding AAA pathology or repair options. Fewer than one in five patients searched the internet or had accessed other sources of information on their own. Most vascular surgeons should assume that patients will present to their first vascular surgery appointment with minimal understanding of the treatment options available to them.

AB - Objective: Shared medical decision making is most important when there are competing options for repair such as in treatment of abdominal aortic aneurysm (AAA). We sought to understand the sources of patients' pre-existing knowledge about AAA to better inform treating physicians about patients' needs for preoperative counseling. Methods: We performed a multicenter survey of patients facing AAA repair at 20 Veterans Affairs hospitals across the United States as part of the Preferences for Open Versus Endovascular Repair of AAA study. A validated survey instrument was administered to examine the sources of information available and commonly used by patients to learn about their repair options. The survey was administered by study personnel before the patient had any interaction with the vascular surgeon because survey data were collected before the vascular clinic visit. Results: Preliminary analysis of data from 99 patients showed that our cohort was primarily male (99%) and elderly (mean age 73 years). Patients commonly had a history of hypertension (86%), prior myocardial infarction (32%), diabetes (32%), and were overweight (58%). Patients arrived at their surgeon's office appointment with limited information. A majority of patients (52%) reported that they had not talked to their primary care physician at all about their options for AAA repair, and one-half (50%) reported that their view of the different surgical options had not been influenced by anyone. Slightly less than one-half of patients reported that they did not receive any information about open surgical aneurysm repair and endovascular aortic aneurysm repair (41% and 37%, respectively). Few patients indicated using the internet as their main source of information about open surgical aneurysm repair and endovascular aortic aneurysm repair (10% and 11%, respectively). Conclusions: Patients are commonly referred for AAA repair having little to no information regarding AAA pathology or repair options. Fewer than one in five patients searched the internet or had accessed other sources of information on their own. Most vascular surgeons should assume that patients will present to their first vascular surgery appointment with minimal understanding of the treatment options available to them.

KW - Abdominal aortic aneurysm

KW - Decision ai Patient education

KW - EVAR

KW - Information

KW - Shared decision making

UR - http://www.scopus.com/inward/record.url?scp=85071394233&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85071394233&partnerID=8YFLogxK

U2 - 10.1016/j.jvs.2019.04.460

DO - 10.1016/j.jvs.2019.04.460

M3 - Article

C2 - 31353272

AN - SCOPUS:85071394233

JO - Journal of Vascular Surgery

JF - Journal of Vascular Surgery

SN - 0741-5214

ER -