Living my family's story: Identifying the lived experience in healthy women at risk for hereditary breast cancer

Meghan L. Underhill, Robin M. Lally, Marc T. Kiviniemi, Christine Murekeyisoni, Suzanne S. Dickerson

Research output: Contribution to journalArticle

11 Scopus citations


BACKGROUND: Based on known or suggested genetic risk factors, a growing number of women now live with knowledge of a potential cancer diagnosis that may never occur. Given this, it is important to understand the meaning of living with high risk for hereditary breast cancer. OBJECTIVE: The objective of the study was to explore how women at high risk for hereditary breast cancer (1) form self-identity, (2) apply self-care strategies toward risk, and (3) describe the meaning of care through a high-risk breast program. METHODS: Interpretive hermeneutic phenomenology guided the qualitative research method. Women at high risk for hereditary breast cancer were recruited from a high-risk breast program. Open-ended interview questions focused on experiences living as women managing high risk for breast cancer. Consistent with hermeneutic methodology, the principal investigator led a team to analyze the interview transcripts. RESULTS: Twenty women participated in in-depth interviews. Analysis revealed that women describe their own identity based on their family story and grieve over actual and potential familial loss. This experience influences self-care strategies, including seeking care from hereditary breast cancer risk experts for early detection and prevention, as well as maintaining a connection for early treatment "when" diagnosis occurs. CONCLUSIONS: Healthy women living with high risk for hereditary breast cancer are living within the context of their family cancer story, which influences how they define themselves and engage in self-care. IMPLICATIONS FOR PRACTICE: Findings present important practical, research, and policy information regarding health promotion, psychosocial assessment, and support for women living with hereditary breast cancer risk. copyright

Original languageEnglish (US)
Pages (from-to)493-504
Number of pages12
JournalCancer Nursing
Issue number6
StatePublished - Nov 1 2012



  • Genetics
  • Hereditary breast cancer risk
  • Nursing
  • Phenomenology

ASJC Scopus subject areas

  • Oncology
  • Oncology(nursing)

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