Health behaviours reported by adults with congenital heart disease across 15 countries

on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD)

Research output: Contribution to journalArticle

2 Citations (Scopus)

Abstract

Background: Health behaviours are essential to maintain optimal health and reduce the risk of cardiovascular complications in adults with congenital heart disease. This study aimed to describe health behaviours in adults with congenital heart disease in 15 countries and to identify patient characteristics associated with optimal health behaviours in the international sample. Design: This was a cross-sectional observational study. Methods: Adults with congenital heart disease (n = 4028, median age = 32 years, interquartile range 25–42 years) completed self-report measures as part of the Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS). Participants reported on seven health behaviours using the Health Behaviors Scale-Congenital Heart Disease. Demographic and medical characteristics were assessed via medical chart review and self-report. Multivariate path analyses with inverse sampling weights were used to investigate study aims. Results: Health behaviour rates for the full sample were 10% binge drinking, 12% cigarette smoking, 6% recreational drug use, 72% annual dental visit, 69% twice daily tooth brushing, 27% daily dental flossing and 43% sport participation. Pairwise comparisons indicated that rates differed between countries. Rates of substance use behaviours were higher in younger, male participants. Optimal dental health behaviours were more common among older, female participants with higher educational attainment while sports participation was more frequent among participants who were younger, male, married, employed/students, with higher educational attainment, less complex anatomical defects and better functional status. Conclusions: Health behaviour rates vary by country. Predictors of health behaviours may reflect larger geographic trends. Our findings have implications for the development and implementation of programmes for the assessment and promotion of optimal health behaviours in adults with congenital heart disease.

Original languageEnglish (US)
JournalEuropean Journal of Preventive Cardiology
DOIs
StateAccepted/In press - Jan 1 2019

Fingerprint

Health Behavior
Heart Diseases
Tooth
Self Report
Sports
Binge Drinking
Program Development
Street Drugs
Health Promotion
Observational Studies
Multivariate Analysis
Cross-Sectional Studies
Smoking
Demography
Students
Weights and Measures

Keywords

  • Heart defects
  • congenital
  • health behaviour
  • patient-reported outcome measures
  • prevention
  • risk factors

ASJC Scopus subject areas

  • Epidemiology
  • Cardiology and Cardiovascular Medicine

Cite this

on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD) (Accepted/In press). Health behaviours reported by adults with congenital heart disease across 15 countries. European Journal of Preventive Cardiology. https://doi.org/10.1177/2047487319876231

Health behaviours reported by adults with congenital heart disease across 15 countries. / on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).

In: European Journal of Preventive Cardiology, 01.01.2019.

Research output: Contribution to journalArticle

on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD) 2019, 'Health behaviours reported by adults with congenital heart disease across 15 countries', European Journal of Preventive Cardiology. https://doi.org/10.1177/2047487319876231
on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Health behaviours reported by adults with congenital heart disease across 15 countries. European Journal of Preventive Cardiology. 2019 Jan 1. https://doi.org/10.1177/2047487319876231
on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). / Health behaviours reported by adults with congenital heart disease across 15 countries. In: European Journal of Preventive Cardiology. 2019.
@article{93a7bfc0eaac468b821c53577fbbba63,
title = "Health behaviours reported by adults with congenital heart disease across 15 countries",
abstract = "Background: Health behaviours are essential to maintain optimal health and reduce the risk of cardiovascular complications in adults with congenital heart disease. This study aimed to describe health behaviours in adults with congenital heart disease in 15 countries and to identify patient characteristics associated with optimal health behaviours in the international sample. Design: This was a cross-sectional observational study. Methods: Adults with congenital heart disease (n = 4028, median age = 32 years, interquartile range 25–42 years) completed self-report measures as part of the Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS). Participants reported on seven health behaviours using the Health Behaviors Scale-Congenital Heart Disease. Demographic and medical characteristics were assessed via medical chart review and self-report. Multivariate path analyses with inverse sampling weights were used to investigate study aims. Results: Health behaviour rates for the full sample were 10{\%} binge drinking, 12{\%} cigarette smoking, 6{\%} recreational drug use, 72{\%} annual dental visit, 69{\%} twice daily tooth brushing, 27{\%} daily dental flossing and 43{\%} sport participation. Pairwise comparisons indicated that rates differed between countries. Rates of substance use behaviours were higher in younger, male participants. Optimal dental health behaviours were more common among older, female participants with higher educational attainment while sports participation was more frequent among participants who were younger, male, married, employed/students, with higher educational attainment, less complex anatomical defects and better functional status. Conclusions: Health behaviour rates vary by country. Predictors of health behaviours may reflect larger geographic trends. Our findings have implications for the development and implementation of programmes for the assessment and promotion of optimal health behaviours in adults with congenital heart disease.",
keywords = "Heart defects, congenital, health behaviour, patient-reported outcome measures, prevention, risk factors",
author = "{on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD)} and Holbein, {Christina E.} and James Peugh and Veldtman, {Gruschen R.} and Silke Apers and Koen Luyckx and Kovacs, {Adrienne H.} and Corina Thomet and Werner Budts and Junko Enomoto and Sluman, {Maayke A.} and Lu, {Chun Wei} and Jackson, {Jamie L.} and Paul Khairy and Cook, {Stephen C.} and Shanthi Chidambarathanu and Luis Alday and Katrine Eriksen and Mikael Dellborg and Malin Berghammer and Bengt Johansson and Mackie, {Andrew S.} and Samuel Menahem and Maryanne Caruana and Alexandra Soufi and Fernandes, {Susan M.} and Kamila White and Edward Callus and Shelby Kutty and Philip Moons",
year = "2019",
month = "1",
day = "1",
doi = "10.1177/2047487319876231",
language = "English (US)",
journal = "European Journal of Preventive Cardiology",
issn = "2047-4873",
publisher = "SAGE Publications Ltd",

}

TY - JOUR

T1 - Health behaviours reported by adults with congenital heart disease across 15 countries

AU - on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD)

AU - Holbein, Christina E.

AU - Peugh, James

AU - Veldtman, Gruschen R.

AU - Apers, Silke

AU - Luyckx, Koen

AU - Kovacs, Adrienne H.

AU - Thomet, Corina

AU - Budts, Werner

AU - Enomoto, Junko

AU - Sluman, Maayke A.

AU - Lu, Chun Wei

AU - Jackson, Jamie L.

AU - Khairy, Paul

AU - Cook, Stephen C.

AU - Chidambarathanu, Shanthi

AU - Alday, Luis

AU - Eriksen, Katrine

AU - Dellborg, Mikael

AU - Berghammer, Malin

AU - Johansson, Bengt

AU - Mackie, Andrew S.

AU - Menahem, Samuel

AU - Caruana, Maryanne

AU - Soufi, Alexandra

AU - Fernandes, Susan M.

AU - White, Kamila

AU - Callus, Edward

AU - Kutty, Shelby

AU - Moons, Philip

PY - 2019/1/1

Y1 - 2019/1/1

N2 - Background: Health behaviours are essential to maintain optimal health and reduce the risk of cardiovascular complications in adults with congenital heart disease. This study aimed to describe health behaviours in adults with congenital heart disease in 15 countries and to identify patient characteristics associated with optimal health behaviours in the international sample. Design: This was a cross-sectional observational study. Methods: Adults with congenital heart disease (n = 4028, median age = 32 years, interquartile range 25–42 years) completed self-report measures as part of the Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS). Participants reported on seven health behaviours using the Health Behaviors Scale-Congenital Heart Disease. Demographic and medical characteristics were assessed via medical chart review and self-report. Multivariate path analyses with inverse sampling weights were used to investigate study aims. Results: Health behaviour rates for the full sample were 10% binge drinking, 12% cigarette smoking, 6% recreational drug use, 72% annual dental visit, 69% twice daily tooth brushing, 27% daily dental flossing and 43% sport participation. Pairwise comparisons indicated that rates differed between countries. Rates of substance use behaviours were higher in younger, male participants. Optimal dental health behaviours were more common among older, female participants with higher educational attainment while sports participation was more frequent among participants who were younger, male, married, employed/students, with higher educational attainment, less complex anatomical defects and better functional status. Conclusions: Health behaviour rates vary by country. Predictors of health behaviours may reflect larger geographic trends. Our findings have implications for the development and implementation of programmes for the assessment and promotion of optimal health behaviours in adults with congenital heart disease.

AB - Background: Health behaviours are essential to maintain optimal health and reduce the risk of cardiovascular complications in adults with congenital heart disease. This study aimed to describe health behaviours in adults with congenital heart disease in 15 countries and to identify patient characteristics associated with optimal health behaviours in the international sample. Design: This was a cross-sectional observational study. Methods: Adults with congenital heart disease (n = 4028, median age = 32 years, interquartile range 25–42 years) completed self-report measures as part of the Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS). Participants reported on seven health behaviours using the Health Behaviors Scale-Congenital Heart Disease. Demographic and medical characteristics were assessed via medical chart review and self-report. Multivariate path analyses with inverse sampling weights were used to investigate study aims. Results: Health behaviour rates for the full sample were 10% binge drinking, 12% cigarette smoking, 6% recreational drug use, 72% annual dental visit, 69% twice daily tooth brushing, 27% daily dental flossing and 43% sport participation. Pairwise comparisons indicated that rates differed between countries. Rates of substance use behaviours were higher in younger, male participants. Optimal dental health behaviours were more common among older, female participants with higher educational attainment while sports participation was more frequent among participants who were younger, male, married, employed/students, with higher educational attainment, less complex anatomical defects and better functional status. Conclusions: Health behaviour rates vary by country. Predictors of health behaviours may reflect larger geographic trends. Our findings have implications for the development and implementation of programmes for the assessment and promotion of optimal health behaviours in adults with congenital heart disease.

KW - Heart defects

KW - congenital

KW - health behaviour

KW - patient-reported outcome measures

KW - prevention

KW - risk factors

UR - http://www.scopus.com/inward/record.url?scp=85073960613&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85073960613&partnerID=8YFLogxK

U2 - 10.1177/2047487319876231

DO - 10.1177/2047487319876231

M3 - Article

C2 - 31529991

AN - SCOPUS:85073960613

JO - European Journal of Preventive Cardiology

JF - European Journal of Preventive Cardiology

SN - 2047-4873

ER -