Functional brain injury rehabilitation: Survivor experiences reported by families and professionals

Sarah E. Wallace, Kelli Evans, Taylor Arnold, Karen Hux

Research output: Contribution to journalArticle

6 Citations (Scopus)

Abstract

Primary objective: The researchers investigated rehabilitation experiences of brain injury (BI) survivors participating in a functional programme. Research design: The researchers used a phenomenological approach involving the collection of artifacts and the analysis of focus group discussions through horizontalizing statements, creating meaning units and clustering codes. Methods and procedures: Focus groups including staff members and survivors' relatives reported perceptions about the programme and survivors' experiences; programme artifacts (e.g. survivors' schedules, website information) provided additional information. Survivors verified focus group responses and an analysis using five assessment measures served to validate positive functional changes among programme participants. Main outcomes: Three general categories of themes emerged: components of functional therapy, programme/culture features supporting functional therapy and family members' and survivors' reactions to a functional programme. Sub-categories and themes provided details about issues central to functional BI treatment. Conclusions: The findings suggest that functional therapy programmes: (a) address family and survivors' goals, (b) occur in the community or real world, (c) are implemented by people in survivors' environments, (d) are collaborative, (e) focus on a positive culture, (f) build on basic skills, (g) allow exploration of discharge options, (h) preserve survivors' privacy and dignity and (i) recognize difficulties associated with transitioning from acute to post-acute rehabilitation.

Original languageEnglish (US)
Pages (from-to)1371-1384
Number of pages14
JournalBrain Injury
Volume21
Issue number13-14
DOIs
StatePublished - Dec 2007

Fingerprint

Brain Injuries
Survivors
Rehabilitation
Focus Groups
Artifacts
Research Personnel
Privacy
Therapeutics
Cluster Analysis
Appointments and Schedules
Research Design

Keywords

  • Community based rehabilitation
  • Family
  • Outcome
  • Traumatic brain injury

ASJC Scopus subject areas

  • Neuroscience (miscellaneous)
  • Developmental and Educational Psychology
  • Clinical Neurology

Cite this

Functional brain injury rehabilitation : Survivor experiences reported by families and professionals. / Wallace, Sarah E.; Evans, Kelli; Arnold, Taylor; Hux, Karen.

In: Brain Injury, Vol. 21, No. 13-14, 12.2007, p. 1371-1384.

Research output: Contribution to journalArticle

Wallace, Sarah E. ; Evans, Kelli ; Arnold, Taylor ; Hux, Karen. / Functional brain injury rehabilitation : Survivor experiences reported by families and professionals. In: Brain Injury. 2007 ; Vol. 21, No. 13-14. pp. 1371-1384.
@article{0763667049574278986a5635964e86f3,
title = "Functional brain injury rehabilitation: Survivor experiences reported by families and professionals",
abstract = "Primary objective: The researchers investigated rehabilitation experiences of brain injury (BI) survivors participating in a functional programme. Research design: The researchers used a phenomenological approach involving the collection of artifacts and the analysis of focus group discussions through horizontalizing statements, creating meaning units and clustering codes. Methods and procedures: Focus groups including staff members and survivors' relatives reported perceptions about the programme and survivors' experiences; programme artifacts (e.g. survivors' schedules, website information) provided additional information. Survivors verified focus group responses and an analysis using five assessment measures served to validate positive functional changes among programme participants. Main outcomes: Three general categories of themes emerged: components of functional therapy, programme/culture features supporting functional therapy and family members' and survivors' reactions to a functional programme. Sub-categories and themes provided details about issues central to functional BI treatment. Conclusions: The findings suggest that functional therapy programmes: (a) address family and survivors' goals, (b) occur in the community or real world, (c) are implemented by people in survivors' environments, (d) are collaborative, (e) focus on a positive culture, (f) build on basic skills, (g) allow exploration of discharge options, (h) preserve survivors' privacy and dignity and (i) recognize difficulties associated with transitioning from acute to post-acute rehabilitation.",
keywords = "Community based rehabilitation, Family, Outcome, Traumatic brain injury",
author = "Wallace, {Sarah E.} and Kelli Evans and Taylor Arnold and Karen Hux",
year = "2007",
month = "12",
doi = "10.1080/02699050701785088",
language = "English (US)",
volume = "21",
pages = "1371--1384",
journal = "Brain Injury",
issn = "0269-9052",
publisher = "Informa Healthcare",
number = "13-14",

}

TY - JOUR

T1 - Functional brain injury rehabilitation

T2 - Survivor experiences reported by families and professionals

AU - Wallace, Sarah E.

AU - Evans, Kelli

AU - Arnold, Taylor

AU - Hux, Karen

PY - 2007/12

Y1 - 2007/12

N2 - Primary objective: The researchers investigated rehabilitation experiences of brain injury (BI) survivors participating in a functional programme. Research design: The researchers used a phenomenological approach involving the collection of artifacts and the analysis of focus group discussions through horizontalizing statements, creating meaning units and clustering codes. Methods and procedures: Focus groups including staff members and survivors' relatives reported perceptions about the programme and survivors' experiences; programme artifacts (e.g. survivors' schedules, website information) provided additional information. Survivors verified focus group responses and an analysis using five assessment measures served to validate positive functional changes among programme participants. Main outcomes: Three general categories of themes emerged: components of functional therapy, programme/culture features supporting functional therapy and family members' and survivors' reactions to a functional programme. Sub-categories and themes provided details about issues central to functional BI treatment. Conclusions: The findings suggest that functional therapy programmes: (a) address family and survivors' goals, (b) occur in the community or real world, (c) are implemented by people in survivors' environments, (d) are collaborative, (e) focus on a positive culture, (f) build on basic skills, (g) allow exploration of discharge options, (h) preserve survivors' privacy and dignity and (i) recognize difficulties associated with transitioning from acute to post-acute rehabilitation.

AB - Primary objective: The researchers investigated rehabilitation experiences of brain injury (BI) survivors participating in a functional programme. Research design: The researchers used a phenomenological approach involving the collection of artifacts and the analysis of focus group discussions through horizontalizing statements, creating meaning units and clustering codes. Methods and procedures: Focus groups including staff members and survivors' relatives reported perceptions about the programme and survivors' experiences; programme artifacts (e.g. survivors' schedules, website information) provided additional information. Survivors verified focus group responses and an analysis using five assessment measures served to validate positive functional changes among programme participants. Main outcomes: Three general categories of themes emerged: components of functional therapy, programme/culture features supporting functional therapy and family members' and survivors' reactions to a functional programme. Sub-categories and themes provided details about issues central to functional BI treatment. Conclusions: The findings suggest that functional therapy programmes: (a) address family and survivors' goals, (b) occur in the community or real world, (c) are implemented by people in survivors' environments, (d) are collaborative, (e) focus on a positive culture, (f) build on basic skills, (g) allow exploration of discharge options, (h) preserve survivors' privacy and dignity and (i) recognize difficulties associated with transitioning from acute to post-acute rehabilitation.

KW - Community based rehabilitation

KW - Family

KW - Outcome

KW - Traumatic brain injury

UR - http://www.scopus.com/inward/record.url?scp=37149049887&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=37149049887&partnerID=8YFLogxK

U2 - 10.1080/02699050701785088

DO - 10.1080/02699050701785088

M3 - Article

C2 - 18066939

AN - SCOPUS:37149049887

VL - 21

SP - 1371

EP - 1384

JO - Brain Injury

JF - Brain Injury

SN - 0269-9052

IS - 13-14

ER -