Feasibility of synchronous online focus groups of rural Breast cancer survivors on web-Based distress self-Management

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1 Citation (Scopus)

Abstract

PURPOSE: To obtain rural Breast cancer survivors’ perceptions of CaringGuidance™ After Breast Cancer Diagnosis, a web-based, psychoeducational, distress self-management program, and explore the feasibility of gathering survivors’ perceptions about CaringGuidance using online focus groups (OFGs). PARTICIPANTS & SETTING: 23 survivors of early-stage Breast cancer, a mean of 2.5 years postdiagnosis, living in rural Nebraska. METHODOLOGIC APPROACH: Participants reviewed the CaringGuidance program independently for an average of 12 days prior to their designated OFG. The extent of participants’ pre-OFG review was verified electronically. Four synchronous, moderated OFGs were conducted. Demographic and OFG participation data were used to assess feasibility. Transcripts of OFGs were analyzed using directed content analysis. FINDINGS: All enrolled women participated in their designated OFG. Five themes of the quality and usability of CaringGuidance were identified. Recommendations were used to modify CaringGuidance prior to the pilot efficacy trial. IMPLICATIONS FOR NURSING: The findings contribute to nurses’ knowledge and guide assessment and interventions pertaining to psychosocial needs of rural women with Breast cancer, OFGs, and qualities rural women seek in web-based psychological interventions.

Original languageEnglish (US)
Pages (from-to)E111-E124
JournalOncology nursing forum
Volume45
Issue number6
DOIs
StatePublished - Nov 2018

Fingerprint

Self Care
Focus Groups
Survivors
Breast Neoplasms
Nurses
Demography
Psychology

Keywords

  • Breast cancer
  • Distress
  • Focus group
  • Internet
  • Rural
  • Self-management

ASJC Scopus subject areas

  • Oncology(nursing)

Cite this

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title = "Feasibility of synchronous online focus groups of rural Breast cancer survivors on web-Based distress self-Management",
abstract = "PURPOSE: To obtain rural Breast cancer survivors’ perceptions of CaringGuidance™ After Breast Cancer Diagnosis, a web-based, psychoeducational, distress self-management program, and explore the feasibility of gathering survivors’ perceptions about CaringGuidance using online focus groups (OFGs). PARTICIPANTS & SETTING: 23 survivors of early-stage Breast cancer, a mean of 2.5 years postdiagnosis, living in rural Nebraska. METHODOLOGIC APPROACH: Participants reviewed the CaringGuidance program independently for an average of 12 days prior to their designated OFG. The extent of participants’ pre-OFG review was verified electronically. Four synchronous, moderated OFGs were conducted. Demographic and OFG participation data were used to assess feasibility. Transcripts of OFGs were analyzed using directed content analysis. FINDINGS: All enrolled women participated in their designated OFG. Five themes of the quality and usability of CaringGuidance were identified. Recommendations were used to modify CaringGuidance prior to the pilot efficacy trial. IMPLICATIONS FOR NURSING: The findings contribute to nurses’ knowledge and guide assessment and interventions pertaining to psychosocial needs of rural women with Breast cancer, OFGs, and qualities rural women seek in web-based psychological interventions.",
keywords = "Breast cancer, Distress, Focus group, Internet, Rural, Self-management",
author = "Lally, {Robin M} and Eisenhauer, {Christine M} and Sydney Buckland and Kupzyk, {Kevin A}",
year = "2018",
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language = "English (US)",
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AB - PURPOSE: To obtain rural Breast cancer survivors’ perceptions of CaringGuidance™ After Breast Cancer Diagnosis, a web-based, psychoeducational, distress self-management program, and explore the feasibility of gathering survivors’ perceptions about CaringGuidance using online focus groups (OFGs). PARTICIPANTS & SETTING: 23 survivors of early-stage Breast cancer, a mean of 2.5 years postdiagnosis, living in rural Nebraska. METHODOLOGIC APPROACH: Participants reviewed the CaringGuidance program independently for an average of 12 days prior to their designated OFG. The extent of participants’ pre-OFG review was verified electronically. Four synchronous, moderated OFGs were conducted. Demographic and OFG participation data were used to assess feasibility. Transcripts of OFGs were analyzed using directed content analysis. FINDINGS: All enrolled women participated in their designated OFG. Five themes of the quality and usability of CaringGuidance were identified. Recommendations were used to modify CaringGuidance prior to the pilot efficacy trial. IMPLICATIONS FOR NURSING: The findings contribute to nurses’ knowledge and guide assessment and interventions pertaining to psychosocial needs of rural women with Breast cancer, OFGs, and qualities rural women seek in web-based psychological interventions.

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