Duration of AAC technology use by persons with ALS

Laura J. Ball, David R Beukelman, Elizabeth Anderson, Denise V. Bilyeu, Julie Robertson, Gary L. Pattee

Research output: Contribution to journalArticle

19 Citations (Scopus)

Abstract

The purposes of this research report are (1) to document the duration of augmentative and alternative communication (AAC) technology use by 45 persons with amyotrophic lateral sclerosis (ALS), 7 of whom were still living (with mechanical ventilation) and continue to use the technology; (2) to identify factors that might influence duration of AAC technology use; and (3) to report the AAC technology donation trends of families after persons with ALS are no longer living. The duration of AAC use varied considerably across participants; however, the mean duration was 28.4 months for all participants, 25 months for persons with primary bulbar ALS, and 34.2 months for those with spinal ALS. Review of the data reveals that invasive ventilation and timeliness of referral for AAC assessment have a greater impact on duration of AAC use than ALS type. Of those with ALS who were no longer living, 60% of their families had donated AAC devices to an AAC loan program or to another person with ALS, 32% retained the device, and 8% returned loaner devices to the equipment lending program that had originally provided the device.

Original languageEnglish (US)
Pages (from-to)371-381
Number of pages11
JournalJournal of Medical Speech-Language Pathology
Volume15
Issue number4
StatePublished - Dec 1 2007

Fingerprint

Amyotrophic Lateral Sclerosis
Communication
Technology
Equipment and Supplies
Artificial Respiration
Ventilation
Referral and Consultation

ASJC Scopus subject areas

  • Otorhinolaryngology
  • Rehabilitation
  • Speech and Hearing

Cite this

Ball, L. J., Beukelman, D. R., Anderson, E., Bilyeu, D. V., Robertson, J., & Pattee, G. L. (2007). Duration of AAC technology use by persons with ALS. Journal of Medical Speech-Language Pathology, 15(4), 371-381.

Duration of AAC technology use by persons with ALS. / Ball, Laura J.; Beukelman, David R; Anderson, Elizabeth; Bilyeu, Denise V.; Robertson, Julie; Pattee, Gary L.

In: Journal of Medical Speech-Language Pathology, Vol. 15, No. 4, 01.12.2007, p. 371-381.

Research output: Contribution to journalArticle

Ball, LJ, Beukelman, DR, Anderson, E, Bilyeu, DV, Robertson, J & Pattee, GL 2007, 'Duration of AAC technology use by persons with ALS', Journal of Medical Speech-Language Pathology, vol. 15, no. 4, pp. 371-381.
Ball LJ, Beukelman DR, Anderson E, Bilyeu DV, Robertson J, Pattee GL. Duration of AAC technology use by persons with ALS. Journal of Medical Speech-Language Pathology. 2007 Dec 1;15(4):371-381.
Ball, Laura J. ; Beukelman, David R ; Anderson, Elizabeth ; Bilyeu, Denise V. ; Robertson, Julie ; Pattee, Gary L. / Duration of AAC technology use by persons with ALS. In: Journal of Medical Speech-Language Pathology. 2007 ; Vol. 15, No. 4. pp. 371-381.
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