Conceptualizing and measuring family quality of life

Jean Ann Summers, D. J. Poston, A. P. Turnbull, J. Marquis, L. Hoffman, H. Mannan, M. Wang

Research output: Contribution to journalArticle

132 Citations (Scopus)

Abstract

Background: Increasing emphasis on family-centred approaches to services and supports for families of children with disabilities has surfaced the issue of accountability for family outcomes. We present a review of literature about the impacts of children with disabilities on families as a backdrop to proposing family quality of life as a concept that encompasses impacts of disability and one that can be used to assess the impact of supports and services on families. Method: We briefly introduce the Beach Center Family Quality of Life Scale, providing information about its factor structure, reliability and convergent validity. Results: The Beach Center Family Quality of Life Scale contains 25 items assessing family ratings of importance and satisfaction with five domains: Family interaction, Parenting, Emotional well-being, Physical/material well-being and Disability-related supports. Conclusion: We present a framework for utilizing a measure of family quality of life as a long-term outcome in concert with other short-term measures of service outcomes for families.

Original languageEnglish (US)
Pages (from-to)777-783
Number of pages7
JournalJournal of Intellectual Disability Research
Volume49
Issue number10
DOIs
StatePublished - Oct 1 2005

Fingerprint

quality of life
Quality of Life
disability
Disabled Children
well-being
Social Responsibility
Parenting
Reproducibility of Results
rating
Outcome Assessment (Health Care)
responsibility
interaction

Keywords

  • Disability
  • Family
  • Measurement
  • Outcomes
  • Quality of life

ASJC Scopus subject areas

  • Rehabilitation
  • Arts and Humanities (miscellaneous)
  • Neurology
  • Clinical Neurology
  • Psychiatry and Mental health

Cite this

Summers, J. A., Poston, D. J., Turnbull, A. P., Marquis, J., Hoffman, L., Mannan, H., & Wang, M. (2005). Conceptualizing and measuring family quality of life. Journal of Intellectual Disability Research, 49(10), 777-783. https://doi.org/10.1111/j.1365-2788.2005.00751.x

Conceptualizing and measuring family quality of life. / Summers, Jean Ann; Poston, D. J.; Turnbull, A. P.; Marquis, J.; Hoffman, L.; Mannan, H.; Wang, M.

In: Journal of Intellectual Disability Research, Vol. 49, No. 10, 01.10.2005, p. 777-783.

Research output: Contribution to journalArticle

Summers, JA, Poston, DJ, Turnbull, AP, Marquis, J, Hoffman, L, Mannan, H & Wang, M 2005, 'Conceptualizing and measuring family quality of life', Journal of Intellectual Disability Research, vol. 49, no. 10, pp. 777-783. https://doi.org/10.1111/j.1365-2788.2005.00751.x
Summers JA, Poston DJ, Turnbull AP, Marquis J, Hoffman L, Mannan H et al. Conceptualizing and measuring family quality of life. Journal of Intellectual Disability Research. 2005 Oct 1;49(10):777-783. https://doi.org/10.1111/j.1365-2788.2005.00751.x
Summers, Jean Ann ; Poston, D. J. ; Turnbull, A. P. ; Marquis, J. ; Hoffman, L. ; Mannan, H. ; Wang, M. / Conceptualizing and measuring family quality of life. In: Journal of Intellectual Disability Research. 2005 ; Vol. 49, No. 10. pp. 777-783.
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