Common Obstacles to the Daily Functioning of Pediatric Traumatically Brain Injured Patients: Perceptions of Caregivers and Psychologists

William J Warzak, T. M. Allan, L. A. Ford, V. Stefans

Research output: Contribution to journalArticle

Abstract

Common difficulties encountered by patients with pediatric traumatic brain injuries (referred to hereafter as pediatric TBI patients) were identified, and the congruence between caregiver and professional perceptions of these problems was examined. Forty-seven caregivers identified 118 obstacles experienced in the care of their pediatric TBI patients. Another sample of 46 caregivers crossvalidated these problems by rating each for its frequency and difficulty. Items were rank ordered by their composite score, a derived measure obtained for each item by cross-multiplying the frequency and difficulty ratings. Twenty psychologists who work with pediatric TBI patients also rated each of the 118 problem situations. A modest correlation (tau =.28, p <.001) between the two groups' rank orders of the problem situations, although significant, suggests that there are discrepancies between caregiver and professional perceptions of problem situations. Items perceived as most common and difficult by caregivers often received far lower ratings by psychologists and vice versa. The results suggest that carefully evaluating individual patient concerns may contribute to more efficient use of professional resources and improved patient education and follow-up care.

Original languageEnglish (US)
Pages (from-to)133-141
Number of pages9
JournalChildren's Health Care
Volume24
Issue number2
DOIs
StatePublished - Apr 1 1995

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Caregivers
Pediatrics
Psychology
Brain
Aftercare
Patient Education

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Developmental and Educational Psychology
  • Clinical Psychology

Cite this

Common Obstacles to the Daily Functioning of Pediatric Traumatically Brain Injured Patients : Perceptions of Caregivers and Psychologists. / Warzak, William J; Allan, T. M.; Ford, L. A.; Stefans, V.

In: Children's Health Care, Vol. 24, No. 2, 01.04.1995, p. 133-141.

Research output: Contribution to journalArticle

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