Collaborative Clinical Research on End-of-Life Care in Pediatric Oncology

Suzanne Nuss, Pamela S. Hinds, Deborah A. LaFond

Research output: Contribution to journalArticle

16 Citations (Scopus)

Abstract

Objectives: To present an overview of research into end-of-life (EoL) care for pediatric patients with cancer and to describe research completed by a newly formed collaboration of researchers. Data Sources: Professional group position papers and guidelines; research studies. Conclusion: Studies to date in pediatric EoL care used retrospective, descriptive, or pilot intervention designs, have been conducted in single-institution settings, and have included small numbers of patients. Most studies have explored perspectives of parents and health care professionals but have omitted the perspective of the dying child. IMplications for Nursing Practice: Advancing the science of EoL care will depend on intervention-based clinical trials that include the perspective of the dying child in addition to parents and health care professionals.

Original languageEnglish (US)
Pages (from-to)125-134
Number of pages10
JournalSeminars in oncology nursing
Volume21
Issue number2
DOIs
StatePublished - Jan 1 2005

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Terminal Care
Pediatrics
Parents
Research
Delivery of Health Care
Information Storage and Retrieval
Nursing
Research Personnel
Clinical Trials
Guidelines
Neoplasms

ASJC Scopus subject areas

  • Oncology(nursing)

Cite this

Collaborative Clinical Research on End-of-Life Care in Pediatric Oncology. / Nuss, Suzanne; Hinds, Pamela S.; LaFond, Deborah A.

In: Seminars in oncology nursing, Vol. 21, No. 2, 01.01.2005, p. 125-134.

Research output: Contribution to journalArticle

Nuss, Suzanne ; Hinds, Pamela S. ; LaFond, Deborah A. / Collaborative Clinical Research on End-of-Life Care in Pediatric Oncology. In: Seminars in oncology nursing. 2005 ; Vol. 21, No. 2. pp. 125-134.
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