Caregiver Perceptions of Their Influence on Cancer Treatment Decision Making

Intersections of Language, Identity, and Illness

Janice L. Krieger, Angela Palmer-Wackerly, Jessica L. Krok-Schoen, Phokeng M. Dailey, Julianne C. Wojno, Nancy Schoenberg, Electra D. Paskett, Mark Dignan

Research output: Contribution to journalArticle

11 Citations (Scopus)

Abstract

Serious illness of a loved one can disrupt a caregiver’s sense of self and relationships. We examined the language caregivers use to describe the cancer treatment decision making of a loved one to understand how caregivers frame their own identity relative to a patient’s illness. We analyzed transcripts from in-depth interviews conducted with caregivers (N = 58) of cancer patients to examine the intersection among language, identity, and illness. Caregivers with a patient-level personal identity frame used phrases such as their body, their decision. Caregivers with a relational identity frame used plural pronouns such as we or our when describing the treatment decision. Importantly, some caregivers perceived an illness identity gap in that the patients’ perceptions of their illness identity differed from their own. Illness identity gaps are theorized to be associated with treatment decision making more closely aligned with intergroup, rather than interpersonal, processes.

Original languageEnglish (US)
Pages (from-to)640-656
Number of pages17
JournalJournal of Language and Social Psychology
Volume34
Issue number6
DOIs
StatePublished - Dec 1 2015
Externally publishedYes

Fingerprint

Caregivers
caregiver
Decision Making
cancer
Language
illness
decision making
language
Neoplasms
Therapeutics
Illness
Cancer
Interviews
interview

Keywords

  • cancer clinical trials
  • communication theory of identity
  • family decision making
  • illness identity

ASJC Scopus subject areas

  • Social Psychology
  • Education
  • Language and Linguistics
  • Anthropology
  • Sociology and Political Science
  • Linguistics and Language

Cite this

Caregiver Perceptions of Their Influence on Cancer Treatment Decision Making : Intersections of Language, Identity, and Illness. / Krieger, Janice L.; Palmer-Wackerly, Angela; Krok-Schoen, Jessica L.; Dailey, Phokeng M.; Wojno, Julianne C.; Schoenberg, Nancy; Paskett, Electra D.; Dignan, Mark.

In: Journal of Language and Social Psychology, Vol. 34, No. 6, 01.12.2015, p. 640-656.

Research output: Contribution to journalArticle

Krieger, Janice L. ; Palmer-Wackerly, Angela ; Krok-Schoen, Jessica L. ; Dailey, Phokeng M. ; Wojno, Julianne C. ; Schoenberg, Nancy ; Paskett, Electra D. ; Dignan, Mark. / Caregiver Perceptions of Their Influence on Cancer Treatment Decision Making : Intersections of Language, Identity, and Illness. In: Journal of Language and Social Psychology. 2015 ; Vol. 34, No. 6. pp. 640-656.
@article{041c598decb341c585ddc50f31f66962,
title = "Caregiver Perceptions of Their Influence on Cancer Treatment Decision Making: Intersections of Language, Identity, and Illness",
abstract = "Serious illness of a loved one can disrupt a caregiver’s sense of self and relationships. We examined the language caregivers use to describe the cancer treatment decision making of a loved one to understand how caregivers frame their own identity relative to a patient’s illness. We analyzed transcripts from in-depth interviews conducted with caregivers (N = 58) of cancer patients to examine the intersection among language, identity, and illness. Caregivers with a patient-level personal identity frame used phrases such as their body, their decision. Caregivers with a relational identity frame used plural pronouns such as we or our when describing the treatment decision. Importantly, some caregivers perceived an illness identity gap in that the patients’ perceptions of their illness identity differed from their own. Illness identity gaps are theorized to be associated with treatment decision making more closely aligned with intergroup, rather than interpersonal, processes.",
keywords = "cancer clinical trials, communication theory of identity, family decision making, illness identity",
author = "Krieger, {Janice L.} and Angela Palmer-Wackerly and Krok-Schoen, {Jessica L.} and Dailey, {Phokeng M.} and Wojno, {Julianne C.} and Nancy Schoenberg and Paskett, {Electra D.} and Mark Dignan",
year = "2015",
month = "12",
day = "1",
doi = "10.1177/0261927X15587556",
language = "English (US)",
volume = "34",
pages = "640--656",
journal = "Journal of Language and Social Psychology",
issn = "0261-927X",
publisher = "SAGE Publications Inc.",
number = "6",

}

TY - JOUR

T1 - Caregiver Perceptions of Their Influence on Cancer Treatment Decision Making

T2 - Intersections of Language, Identity, and Illness

AU - Krieger, Janice L.

AU - Palmer-Wackerly, Angela

AU - Krok-Schoen, Jessica L.

AU - Dailey, Phokeng M.

AU - Wojno, Julianne C.

AU - Schoenberg, Nancy

AU - Paskett, Electra D.

AU - Dignan, Mark

PY - 2015/12/1

Y1 - 2015/12/1

N2 - Serious illness of a loved one can disrupt a caregiver’s sense of self and relationships. We examined the language caregivers use to describe the cancer treatment decision making of a loved one to understand how caregivers frame their own identity relative to a patient’s illness. We analyzed transcripts from in-depth interviews conducted with caregivers (N = 58) of cancer patients to examine the intersection among language, identity, and illness. Caregivers with a patient-level personal identity frame used phrases such as their body, their decision. Caregivers with a relational identity frame used plural pronouns such as we or our when describing the treatment decision. Importantly, some caregivers perceived an illness identity gap in that the patients’ perceptions of their illness identity differed from their own. Illness identity gaps are theorized to be associated with treatment decision making more closely aligned with intergroup, rather than interpersonal, processes.

AB - Serious illness of a loved one can disrupt a caregiver’s sense of self and relationships. We examined the language caregivers use to describe the cancer treatment decision making of a loved one to understand how caregivers frame their own identity relative to a patient’s illness. We analyzed transcripts from in-depth interviews conducted with caregivers (N = 58) of cancer patients to examine the intersection among language, identity, and illness. Caregivers with a patient-level personal identity frame used phrases such as their body, their decision. Caregivers with a relational identity frame used plural pronouns such as we or our when describing the treatment decision. Importantly, some caregivers perceived an illness identity gap in that the patients’ perceptions of their illness identity differed from their own. Illness identity gaps are theorized to be associated with treatment decision making more closely aligned with intergroup, rather than interpersonal, processes.

KW - cancer clinical trials

KW - communication theory of identity

KW - family decision making

KW - illness identity

UR - http://www.scopus.com/inward/record.url?scp=84946124947&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84946124947&partnerID=8YFLogxK

U2 - 10.1177/0261927X15587556

DO - 10.1177/0261927X15587556

M3 - Article

VL - 34

SP - 640

EP - 656

JO - Journal of Language and Social Psychology

JF - Journal of Language and Social Psychology

SN - 0261-927X

IS - 6

ER -