A blessing and a curse

Head and neck cancer survivors' experiences

Barbara Swore Fletcher, Marlene Z. Cohen, Karen Schumacher, William Lydiatt

Research output: Contribution to journalArticle

19 Citations (Scopus)

Abstract

Background: Head and neck cancer (HNC) survivors often exhibit late symptoms or adverse effects of treatment that may severely disrupt their ability to speak, eat, breathe, and associate with others. Research has focused on survival and quality of life associated with treatment and/or stage of cancer. Although research shows communication problems in 50% of survivors, few studies have assessed functional speech, and none describe HNC survivor perspectives on speech or communication more broadly. Objective: The purpose of this study was to describe survivors' experience of communication during and after treatment. Methods: A phenomenological, descriptive, and interpretive research method was used to study 39 HNC survivors. Interviews included open-ended questions about their communication experiences. Researchers conducted line-by-line coding, identified theme labels, and compared themes in all interviews. Procedures to ensure scientific rigor included data validation and consensus. Results: Intertwined positive/negative aspects of communication were described. Two major themes were identified: "change in communication," which included functional aspects of communication, and "going deeper into life," which included the positive aspects of the process. Conclusions: This study is the first to describe day-to-day communication experiences from the perspective of HNC survivors. The deeply personal aspects of communication included functional and existential themes far beyond the ability to speak. For these participants, deeper change came from their experience and was carried forward in their lives. Implications for Practice: Survivors benefited from support and understanding offered by family, friends, and healthcare professionals. This difficult situation served as a catalyst for deeper human change.

Original languageEnglish (US)
Pages (from-to)126-132
Number of pages7
JournalCancer Nursing
Volume35
Issue number2
DOIs
StatePublished - Mar 1 2012

Fingerprint

Head and Neck Neoplasms
Survivors
Communication
Aptitude
Research
Interviews
Consensus
Therapeutics
Quality of Life
Research Personnel
Delivery of Health Care
Survival

Keywords

  • Cancer
  • Communication
  • Head and neck
  • Oncology
  • Positive
  • Survivor

ASJC Scopus subject areas

  • Oncology
  • Oncology(nursing)

Cite this

Swore Fletcher, B., Cohen, M. Z., Schumacher, K., & Lydiatt, W. (2012). A blessing and a curse: Head and neck cancer survivors' experiences. Cancer Nursing, 35(2), 126-132. https://doi.org/10.1097/NCC.0b013e31821bd054

A blessing and a curse : Head and neck cancer survivors' experiences. / Swore Fletcher, Barbara; Cohen, Marlene Z.; Schumacher, Karen; Lydiatt, William.

In: Cancer Nursing, Vol. 35, No. 2, 01.03.2012, p. 126-132.

Research output: Contribution to journalArticle

Swore Fletcher, B, Cohen, MZ, Schumacher, K & Lydiatt, W 2012, 'A blessing and a curse: Head and neck cancer survivors' experiences', Cancer Nursing, vol. 35, no. 2, pp. 126-132. https://doi.org/10.1097/NCC.0b013e31821bd054
Swore Fletcher, Barbara ; Cohen, Marlene Z. ; Schumacher, Karen ; Lydiatt, William. / A blessing and a curse : Head and neck cancer survivors' experiences. In: Cancer Nursing. 2012 ; Vol. 35, No. 2. pp. 126-132.
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