2019 American College of Rheumatology Recommended Patient-Reported Functional Status Assessment Measures in Rheumatoid Arthritis

Claire E.H. Barber, Jo Ann Zell, Jinoos Yazdany, Aileen M. Davis, Laura Cappelli, Linda Ehrlich-Jones, Donna Everix, J. Carter Thorne, Victoria Bohm, Lisa Suter, Alex Limanni, Kaleb Michaud

Research output: Contribution to journalArticle

Abstract

Objective: To develop American College of Rheumatology (ACR) recommendations for patient-reported Functional Status Assessment Measures (FSAMs) for use in routine clinical practice in patients with rheumatoid arthritis (RA). Methods: We convened a workgroup to conduct a systematic review of published literature through March 16, 2017 and abstract FSAM properties. Based upon initial search results and clinical input, we focused on the following FSAMs appropriate for routine clinical use: the Health Assessment Questionnaire (HAQ) and derived measures and the Patient-Reported Outcomes Measurement Information System (PROMIS) tool. We used the Consensus-Based Standards for the Selection of Health Measurement Instruments (COSMIN) 4-point scoring method to evaluate each FSAM, allowing for overall level of evidence assessment. We identified FSAMs fulfilling a predefined minimum standard and, through a modified Delphi process, selected preferred FSAMs for regular use in most clinic settings. Results: The search identified 11,835 articles, of which 56 were included in the review. Descriptions of the measures, properties, study quality, level of evidence, and feasibility were abstracted and scored. Following a modified Delphi process, 7 measures fulfilled the minimum standard for regular use in most clinic settings, and 3 measures were recommended: the PROMIS physical function 10-item short form (PROMIS PF10a), the HAQ-II, and the Multidimensional HAQ. Conclusion: This work establishes ACR recommendations for preferred RA FSAMs for regular use in most clinic settings. These results will inform clinical practice and can support future ACR quality measure development as well as highlight ongoing research needs.

Original languageEnglish (US)
Pages (from-to)1531-1539
Number of pages9
JournalArthritis Care and Research
Volume71
Issue number12
DOIs
StatePublished - Dec 1 2019

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Rheumatoid Arthritis
Rheumatology
Information Systems
Health
Health Information Systems
Process Assessment (Health Care)
Research Design
Research
Surveys and Questionnaires
Patient Reported Outcome Measures

ASJC Scopus subject areas

  • Rheumatology

Cite this

2019 American College of Rheumatology Recommended Patient-Reported Functional Status Assessment Measures in Rheumatoid Arthritis. / Barber, Claire E.H.; Zell, Jo Ann; Yazdany, Jinoos; Davis, Aileen M.; Cappelli, Laura; Ehrlich-Jones, Linda; Everix, Donna; Thorne, J. Carter; Bohm, Victoria; Suter, Lisa; Limanni, Alex; Michaud, Kaleb.

In: Arthritis Care and Research, Vol. 71, No. 12, 01.12.2019, p. 1531-1539.

Research output: Contribution to journalArticle

Barber, CEH, Zell, JA, Yazdany, J, Davis, AM, Cappelli, L, Ehrlich-Jones, L, Everix, D, Thorne, JC, Bohm, V, Suter, L, Limanni, A & Michaud, K 2019, '2019 American College of Rheumatology Recommended Patient-Reported Functional Status Assessment Measures in Rheumatoid Arthritis', Arthritis Care and Research, vol. 71, no. 12, pp. 1531-1539. https://doi.org/10.1002/acr.24040
Barber, Claire E.H. ; Zell, Jo Ann ; Yazdany, Jinoos ; Davis, Aileen M. ; Cappelli, Laura ; Ehrlich-Jones, Linda ; Everix, Donna ; Thorne, J. Carter ; Bohm, Victoria ; Suter, Lisa ; Limanni, Alex ; Michaud, Kaleb. / 2019 American College of Rheumatology Recommended Patient-Reported Functional Status Assessment Measures in Rheumatoid Arthritis. In: Arthritis Care and Research. 2019 ; Vol. 71, No. 12. pp. 1531-1539.
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AU - Davis, Aileen M.

AU - Cappelli, Laura

AU - Ehrlich-Jones, Linda

AU - Everix, Donna

AU - Thorne, J. Carter

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AU - Suter, Lisa

AU - Limanni, Alex

AU - Michaud, Kaleb

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